Get Cam In! Kent family appeal for DIY help.
The Edmonds family are appealing to local Kent businesses in a desperate bid to help re-house their family, as their son battles Muscular Dystrophy.
Lisa and Rob, parents of 11 year old Cameron, who suffers from a severe muscle wasting condition, bought the Gravesend bungalow in October 2010 and have been desperately trying to renovate the house ever since.
Cameron, who is fondly known as Cam, suffers from Duchenne Muscular Dystrophy, a serious and rare genetic disorder that causes progressive muscle loss, and he is not expected to live much past his 21st birthday.
Currently housed in a two bedroom terraced house in Chatham, the couple purchased a bungalow in October 2010 when Cam's condition worsened and using the stairs became increasingly difficult. 15 months later they still haven't been able to move in, due to a year long wait for a disability grant from Gravesham council.
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Now the couple are turning to the local community for help. The bungalow is literally a shell and they are looking for support from businesses and trademan who could provide products and services to help the couple get their family into their longed for home. Despite the long wait, the council is only able to provide a wet room and update the entrance. The rest has to be completely finished by the family.
But time isn't on the Edmonds' family side. Cam is deteriorating fast, and can now barely walk. To get up the stairs at night, he has to crawl unless Rob gives him a piggy back, which isn't always possible, as Rob has a slipped disc.
The family has done all they can on their own but with Rob, Cam's dad, juggling such a mammoth DIY task; working round the clock to fund the project and suffering from a bad back, it looks set to be months and months before they can move in. And each day they have to watch Cam fade a little bit more.
Lisa comments: "I cannot even begin to tell you the difference being in the bungalow will make to our lives. It will change Cam's life. Just for our little boy to be able to have a shower, something most people take for granted, will be amazing. Bathing him is a painfully long process at the moment. He has enough to deal with simply living with his condition everyday as it is, without the added strain of being stuck here, where he can't even walk to his own room without having to climb stairs first!"
The couple want to see Cam settled in a home, free from stress, before the condition really takes hold.
If anyone is able to help, lend expertise, time or donate anything to the big build please do get in touch with Lisa Edmonds on lisajaneedmonds@hotmail.co.uk. To keep in touch with this incredibly brave family's progress, join the 'Get Cam In' Facebook group and help make a little boy very happy.
Watch out also, for a charity single by Emmins "Nobody Knows Their Time" which will be available to download on itunes on March 1st. All proceeds will be donated to research projects decided upon by the families of children suffering from Duchenne Muscular Dystrophy - the song is 100% profit free, the disease is 100% fatal, so please, please, download if you can to help make a difference. Robbie Williams already has, so you'll be in good company!
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